Therapy, Treatment, and Time with Family

Scott's prognosis with Glioblastoma is not that great. We are hoping with the radiation and chemotherapy, that he beats the odds and lives for several years. Median life expectancy with Glioblastoma is 15 months and less than 10% of patients will live 5 or more years. Scott is going to be one of those people. At least that is what I keep telling myself.

When doctors say your husband has a terminal illness, however, you can't help but think of the future. Tears develop as I think of life without him around. Raising our two children and staying in contact with my stepdaughters. Big events and little ones without him around to share them with. Graduations, proms, first dates, learning how to drive, and weddings. All without him. I'm crushed.

So, Scott finished radiation which left him with hair missing (not all of it) and very fatigued. He's been tolerating the chemotherapy and he started feeling pretty good this summer. He started physical and occupational therapy at an outpatient facility and even got a new wheelchair and AFO (ankle foot orthotic) this summer. Below are a few highlights of this summer.

Scott on his final day of radiation! Yay!

Scott and the kids at the circus

Scott and Melayna doing some sidewalk chalk art together

Scott and Melayna at a Sky Sox baseball game - It was Star Trek night!

Scott with two good buddies - Eric and Matt (L to R)

With the help of a friend, Scott got to meet Walter Koenig - Pavel Chekov from Star Trek The Original Series. He was on cloud nine that night!

A replica phaser rifle! Our friend, Jon, works at the Sky Sox and hooked Scott up with a chance to hold it. He was pretty stoked!

My friend, Rhonda, got us Star Wars lightsaber popsicle making kit. It was a hit!

4th of July fireworks! Scott stayed in the car while the kids hung outside and even on the hood of the car. We got a pretty good view, too.

Since Scott was first in the hospital, I took over as tournament organizer for Star Trek Attack Wing at a local game store (Petrie's). Scott, since coming home, has been able to play in the tournament. 

Scott's AFO to assist him with walking! Yes, he can use a walker and move around short distances!

Near the end of summer, we went back to the Sky Sox for their Batman themed night. The fireworks show afterwards was amazing. Here is Scott, the kids, Sox the Fox as Robin, and characters dressed up for the themed night! It was amazing! Thanks Jon for making it even more memorable with Batman dvds. 

Updates posted on our group page: https://www.facebook.com/groups/HopingForHooper/